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Assessment of parental understanding of epilepsy and effects of educational programs in an epilepsy camp

Korean Journal of Pediatrics 2009;52(5):549-556.
Published online May 15, 2009.
Assessment of parental understanding of epilepsy and effects of educational programs in an epilepsy camp
Sung Min Cho1, Soon Hak Kwon2, Doo Kwun Kim1, Jun Sik Kim3, Han Koo Moon4, Hye-Eun Se2, Kye Hyang Lee5, Eun Ju Lee6, Jun Hwa Lee7, Nho Eun Kim8
1Department of Pediatrics, Dongguk University College of Medicine, Gyeongju, Korea
2Department of Pediatrics, School of Medicine, Kyungpook National University, Daegu, Korea
3Department of Pediatrics, School of Medicine, Keimyung University, Daegu, Korea
4Department of Pediatrics, College of Medicine, Yeungnam University, Daegu, Korea
5Deptment of Pediatrics, College of Medicine, Catholic University of Daegu, Daegu, Korea
6Department of Pediatrics, Daegu Fatima Hospital, Daegu, Korea
7Department of Pediatrics, Masan Samsung Hospital, College of Medicine, Sungkyunkwan University, Masan, Korea
8Graduate School of Social Welfare, Ewha Womans University, Seoul, Korea
소아청소년 간질 캠프에 참가한 부모들의 간질에 대한 인식과 교육 프로그램의 효과
조성민1, 권순학2, 김두권1, 김준식3, 문한구4, 서혜은2, 이계향5, 이은주6, 이준화7, 김노은8
1동국대학교 의과대학 소아과학교실
2경북대학교 의과대학 소아과학교실
3계명대학교 의과대학 소아과학교실
4영남대학교 의과대학 소아과학교실
5대구카톨릭대학교 의과대학 소아과학교실
6대구파티마병원 소아청소년과
7마산삼성병원 소아청소년과
8이화여자대학교 사회복지전문대학원
Correspondence: 
Sung Min Cho, Email: smchoped@hotmail.com
Abstract
Purpose
: To assess parental knowledge and understanding of epilepsy including social stigma and evaluate the effects of educational programs on parents in an epilepsy camp.
Methods
: We conducted an epilepsy camp on August 23-24, 2008, at Gyeongsan. Twenty families with an epileptic child each participated in the camp. We performed a survey before and after the camp to obtain data concerning parental understanding of epilepsy and the effects of the camp-based educational programs on the parents. The data were analyzed with SPSS 14.0 using frequency analysis.
Results
: The parents were sufficiently knowledgeable about epilepsy before the camp, and their knowledge and understanding of epilepsy improved further after the camp. Both perceived stigma and enacted stigma against epilepsy were found in 30.0% of the parents. The perceived stigma decreased to 15.0% after the camp.
Conclusion
: This study suggests that social approaches such as epilepsy camps are effective in improving parental knowledge and understanding about epilepsy as well as decreasing their perceived social stigma.
Key Words: Education, Epilepsy, Parents


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